The fight for the life of little Matteo Danieli Ribeiro, who is only 1 year and 3 months old, is nearing a happy end. After the drug was suspended, the court determined in a new trial this Wednesday (31) that the boy was receiving Zolgensma.
The boy Matteo will receive the cure. – Photo: Personal archive / Reproduction / N.D.A boy from Chapeco, west of Santa Catarina, has SMA (spinal muscular atrophy). He needs the most expensive drug in the world, which could cost more than 7 million reais. Matteo’s mother, Anna Giulia Danieli, announced her victory in Justice in an Instagram post.
Three judges of the 9th class of TRF-4 voted for the release of Zolgensma for Matteo. Last week, the Prosecutor General’s Office demanded that the release of the drug be suspended, which was accepted. However, a new test brought the family victory.
The baby should receive medicine at the Erasto Gertner hospital in Parana. The family expects the infusion to take place next week. “Hey guys, we won. We always come to the record asking for help, desperate, we really want to thank you for your prayers and support. Your mobilization was very important,” said Matteo’s mother.
A video taken earlier this week of stopping the drug and asking for help has garnered over 600,000 views and over 35,000 shares. “We want to thank you all for your help. We are very happy and Matteo Z-Day is close,” said the mother.
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Source: Ndmais